Tips for Those with Fibromyalgia

RE: Tips for Those with Fibromyalgia Post by smartfell-r (32) | (11/14/2005) Contact Here is a timely e-mail concerning CFS/Fibromyalgia pain.... The artilce suggests a sugar called "ribose." To buy, you can Google the name or buy on eBay.... eBay has the best prices on this item... The powder is lower priced than the pills... Regards, Jim http://www.ivanhoe.com/channels/p_channelstory.cfm?storyid=12382 October 26, 2005 Treat Pain With Sugar By Vivian Richardson, Ivanhoe Health Correspondent (Ivanhoe Newswire) -- A little sugar can help reduce chronic pain. No, this isn't the sugar you'll find in ice cream or soda pop, but it does have a sweet effect on pain conditions like fibromyalgia. Researchers at the Annapolis Research Center for Effective CFS/Fibromyalgia Therapies tested how effective a certain kind of sugar would be at reducing chronic pain. The treatment goes along with the idea that treating the source of pain is more effective than masking the pain. Jacob Teitelbaum, M.D., is the lead researcher for the study. He likens pain to the oil light on a car dashboard. When the oil light flashes red, we know the car is low on oil. Human pain is analogous to that light. "But, unfortunately, there is nothing written on it," Dr. Teitelbaum says. "Pain is a way of saying something desperately needs attention, whether it's a thorn in your foot or your hands on a hot stove." Dr. Teitelbaum believes one not-so-obvious factor of painful conditions, like fibromyalgia, may be an energy crisis in the body's cells. That's where the sugar ribose comes in. Ribose is used by the cell's power-generators, mitochondria, to make energy molecules for the body. Ribose is actually one component of DNA (deoxyribonucleic acid). The body creates the sugar, however, some people are not able to create enough of their own ribose -- leading to less energy and more pain. Dr. Teitelbaum and his team tested a ribose supplement on 40 patients with fibromyalgia and/or chronic fatigue syndrome. Each patient was given a 5-gram scoop of ribose, usually dissolved in water, three times a day. Later in the study, patients could opt to reduce the dosage to two times per day. Preliminary results of the study show about two-thirds of the subjects reported increased energy and decreased pain. Researchers report 20 percent had a dramatic improvement in their pain levels. The average improvement in pain for all the patients was about 25 percent. Dr. Teitelbaum says these results point to what may be one treatment that can be added to the regimen of relief for chronic pain sufferers. "This is one piece of the puzzle. It helps with the nutritional support," he says. The next step for this research team is to design a larger, double blind study. This article was reported by Ivanhoe.com, who offers Medical Alerts by e-mail every day of the week. To subscribe, go to: http://www.ivanhoe.com/newsalert/. RE: Tips for Those with Fibromyalgia Post By Fibrobabe (Guest Post) (11/06/2005) Hi, I believe I have had fibro since childhood. I can think back to different illnesses and now say they were caused from fibro. I have had some help from using Dr. Paul St. Amand's protacol. You might want to get a copy of his book "What Your Doctor May Not Tell You About Fibromyalgia" I am no longer bed ridden or house bound. This protacol has a large support group and for many has been the answer to prayers. I no longer have to take the high level pain killers and do have days I can be almost normal. RE: Tips for Those with Fibromyalgia Post by valery (87) | (10/28/2005) Profile | Contact It's odd. I did better coping with breast cancer. Mastectomy, chemo, reconstruction, the whole thing. Better than I do with fibro/cfs. I think perhaps it's knowing it will never go away and the fatigue is very hard to deal with. My head wants to do so much around the house, that's where all my lists come from. But the body won't comply. And the memory problems and cognative problems are awful. But I just take one day at a time. Lately I just have had very few 'good' days. It does get depressing. And medication does just so much. I need to find a way to get my head in a better state of mind. Then perhaps the body will follow........... Val RE: Tips for Those with Fibromyalgia Post by valery (87) | (10/28/2005) Profile | Contact You sound like you pretty much have 'it' together. I also have fibro/cfs. I tend to waste alot of time figuring out what to do first. Then I get all down on myself. I make list after list, if I get one or two things on my list done I consider it a good day. It's an awful thing to live with. If you are lucky enough to have a 'good' day, WATCHOUT. Be happy about it, do a little and then enjoy the rest. Over doing will set you back for at least a week if not more. Take it from me. Val RE: Tips for Those with Fibromyalgia Post By sandy (Guest Post) (10/23/2005) yes i am right there with you. tho i am disorganized. but when i have a good day from the pain i do my best to be organized. have you been to rest ministries. and fibrohugs. both are .com sites. God bless you sandy RE: Tips for Those with Fibromyalgia Post By Irish (Guest Post) (10/22/2005) I have MS and fibro....I bless the day I found out about flylady.net. This has been a huge help to me in keeping my home clean and keeping a positive attitude! Good luck! RE: Tips for Those with Fibromyalgia Post By Debbie/Canada (Guest Post) (10/22/2005) Hi Linda It sounds like you really have adjusted to life with fibromyalgia. I am wondering if you have ever considered an all natural way to help relieve your pain. I think I can help, please e-mail me at debempey @ mts.net (remove spaces) and I can send you info that you may be interested in. Debbie RE: Tips for Those with Fibromyalgia Post By Vickie (Guest Post) (10/22/2005) Hi, I also have fibromyalgia and I know exactly how you feel. I have had it since 1995. I do alot like you,I also have a husband who is disabled (arthritis)and he can barely walk. We take care of each other, I'm 56 and he is 58. I never thought that my life would be like this. I was always so active and now I do good to get out of bed. Sometimes my husband has to lift my legs out of bed. The pain is unreal and I take several different meds to help me get through the day. I have found a medicine (Biofreeze) to rub on my joints and it seems to help.Hope you have a nice day. RE: Tips for Those with Fibromyalgia Post By Miranda (Guest Post) (10/22/2005) Congratulations! You have an illness but you also seem to have a very positive attitude. God bless you. RE: Tips for Those with Fibromyalgia Post by valleyrimgirl (466) | (10/21/2005) Contact Life is a challenge. I'm glad to hear that you are able to cope with the fibromyalgia.