The first being something we learned several years ago when he had to switch neurologists because of a new medical insurance/health provider. His entire life, until then, he had been taking 3 pills in the morning and 3 in the afternoon. The new doctor put him on a time-release medication, which helped immensely. We were surprised to learn that for the entire time he was growing up, he never had any medication before bed. By the time he got up in the morning, all the medication was completely out of his body.
He now takes 3 pills when he first wakes up and 3 pills just before he goes to sleep. The medication is constantly in his system and has made a world of difference.
Some of the things we learned might be helpful to others.
Many years ago while working, I got into a conversation with a woman who had a young daughter who had epilepsy and I actually dialed my home phone number and let her speak to my husband. She didn't have a clue about waking her daughter up slowly or opening up all the curtains in the child's room and letting all the sunshine in.
I also don't panic, my husband makes this noise when he's having a seizure and when I hear him doing it, I get up, get my peas and within 3-5 minutes, it's done and over with and he's getting dressed for work.
Over the years we've tried different things and I'm just sharing what we found to work at least for us. There are different kinds of seizures and I know 100% at least in his case, that light, noise, lack of sleep, and being constipated definitely does affect him.
By CaroleeRose from Madison, AL
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The law is the same here as well. There are so many different degrees of seizures and he's never had the type where he falls to the floor and foams at the mouth.
His is a lack of focus and has everything to do with his vision. He also doesn't have them everyday, even when he does have them, 15 minutes afterwards he's fine for the rest of the day. It's an unwritten law between the two of us that I will drive him to work on those days.
We're both very aware of the law about being seizure free for 6 months and he is overly cautious when he drives. Actually, he's a very safe driver and has never had a ticket or accident of any sort. He's had his Driver's License for years and not once have we ever had any issues.
My husband is as close to being a human garbage compacter as any one person can be. He will eat and try all foods. We never noticed any difference with any sugars, though we did notice the energy drinks he bought on his way to work every morning did help his brain wake up. Though expensive, I think of it as a medicine that helps.
Mark is a huge coffee drinker and he drinks very strong, black coffee. There's been a few times we ran out of coffee in between pay days and he starts getting a headache after 2 -3 days. He doesn't usually get headaches but there have been a few times when he did that they resulted in him having a seizure. But keep in mind the headaches on a scale of 1 -10, they would range between 8 -10.
It's not just headaches caused by lack of coffee, any sort of headache from allergies to a tension headache. The energy drinks got to be a bit expensive when he buy one every morning which is why we started using the Airborne. Mark has said two Airborne tablets in one cup of water every morning goes a long way to waking up his brain.
It's amazing what we learned once we started paying attention to everything. I checked out your profile and we actually have a lot in common, starting with photography.
From what you have said, I would think your husband would not be permitted to drive at all. In Ohio, each time you have a seizure you are not supposed to drive for six months afterward. Thanks for the info.
Thanks so much for sharing all this information with us, CaroleeRose! I know both you and your DH are used to it but that doesn't make it any less frightening :-(
I know it's not the same problem, but from the things you've mentioned here (especially the last four triggers), your story reminds me of all the same things that trigger horrible migraines for my best girlfriend of 44 years. Huge similar correlations in general.
Out of curiosity, does refined sugar affect your hubby?
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