Hello and thank you in advance. I have fibromyalgia. I work in 2 jobs that I really enjoy but are physically taxing. I work with autistic students as a one on one. I find myself having to restrain a student or running after him often. I am so sore at the end of the day I am not functioning at my home properly. I am also a nurse doctors assistant at night. I am disorganized naturally so that is also a problem. I have just taken all day just to clean my bathroom. I have to take breaks. I can't afford a cleaning lady. Does anyone have any suggestions? I live alone in a 1 floor condo with my dog. i know there must be fibro support groups out there but I don't know of any.
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Hi, I have fibro too and also work two jobs. I work as a crossing guard and as a lunch room attendant. I know exactly what you mean I too have a hard time functioning at home after work. I find that a good grade of vitamin helps to keep my energy up and also eating a high protien breakfast helps me to keep going. I have found lots of information on the Internet, many claiming cures but the most helpful have been the online support groups sometimes just talking and knowing you are not alone helps. Try the internet and see if it can't help you too.
I have found a lot of help at FlyLady.net.
She taught me how to work 15 minutes at a time (I actually use a timer) and to declutter my home so I don't have so much stuff around that I am overwhelmed.
Not much help with pain, but I don't think those of us with fibro think we will find much help for pain. I have found that working for 15 minutes and resting for at least 15 minutes and drinking lots of water helps me a lot.
I have MS so understand well the challenges of fibro. I'm a natural slob so I have subscribed to the site http://www.flylady.net for help in organizing my home. It is so supportive in breaking down the mess into managable pieces. Check it out--and if you are puny one day, it won't kill the house to be let go one day. I am a single mom of 4 kids and am unable to work--this FlyLady is great! Good Luck! (Have you checked Johns Hopkins, the drug manufacturers rep., even the reumotologist for a support group)
Contact your local arthristis foundation to see if there are any support groups around. There is a magazine called FibroAware, I think, that is great. If you are not under the care of a rheumatologist for fibro, you should be. They are specialists that treat all arthritic-type diseases. Try to cut your tasks down into manageable chunks. Rather than trying to clean the bathroom, decide to clean just the tub. Later, when you feel up to it, cleran the counters, etc. When folding a basket of laundry is overwhelming, I empty the dryer and grab a handful each time I walk past the basket. I can manage 1 handful of laundry at a time. Before I know it the basket is empty. Same with unloading the dishwasher-do just the top rack. Later do the bottom rack, etc. Don't beat up on yourself, try to be kind to yourself and not waste your energy. I too was a special ed teacher, and I needed to transdition into a job that was less physically taxing. Perhaps you could be an aide to less severely handicapped kids?
i found support groups by going to yahoo.com, then to groups. from there, you can search for your topic, or look under health
I have severe FMS. I certainly can undestand what you're talking about. I see someone else has recommended www.flylady.net. I too am a "Flybaby." There is a yahoo egroup called Flybabieswithfibro or perhaps its flyingwithfibro. Those of us who belong all have fibro and are "flybabies."
I am concerned about your working two jobs. Those of us with fibro seem to do things like that. We also try to do more than one thing at a time (multitask). You may need to think about what you're going to do once you can no longer work these jobs. Perhaps you can choose one of the two and go with that. Also, I think you should check out disability insurance.
Best of luck
I find that magnesium supplements helps the pain to some extent.
I've just started taking a mangosteen supplement that I've heard helps fibromyalgia when combined with a liquid mineral drink.
Try a nutritional mangosteen juice, I have seen wonderful results , you can e-mail me for more info deb empey .@ mts. net
hey everyone. FYI yes i do have a rheumatologist. at this time i wouldnt be able to quit either job. i am in debt for about $3000. and need to get that all paid off. thank you for all the input. i do need to go to dr more regularly. but he is 1 that i owe some money to.
A family member has Fibro and here is what I can tell you from them....Two jobs is a little much, I agree with the others. However, moderation of everything in your life is key to getting thru the day, week even month to month. Keep stress to minimum. Water therapy works the best. Try to go without relying on medication, because it will make you feel tired all the time. Find someone on the internet or in your area to talk/vent about fibro, this is a big help. Stretch as much as you can, Hot packs on areas with the most pain. Get good sleep.
If you want an internet buddy, I will hook you up with my family member. Drop me a note.
tallen22000 AT hotmail.com
Best of luck to you!!!
HI I was diagnosed with Fibromyalgia about 5 years ago. I've learned a good dose of humility since then! Prior to developing fibromyalgia, I was a working mom/wife with a good job where I worked a minimum of 40 hrs! etc. Once I developed fibromyalgia I had to retire my "Wonder Woman" bracelets! LOL I'm going to include a few links for you regarding Fibromyalgia. I see the supplements have already been mentioned. Also, exercise is very key. My rheumatologist gets very, very annoyed when his fibromyalgia patients don't listen. My doc recommends stretching routine everyday if possible but at least 3 to 4 days per week plus exercise for 20 minutes per day no excuses for not doing! I've done/do Curves and he really likes this program for fibromyalgia.
I mostly wanted to post to strongly recommend not getting involved in prescription pain meds. I started off taking some very strong pain meds and found myself quickly getting addicted! So I stopped the pain meds, now I take ibuprofen when I absolutely need to. Also, I tried soaking in the tub for about a year plus thinking it helped and it really didn't! I find a good hot shower (not too hot which is very bad for the skin, etc!) does more for me personally than soaking in tub. I had very, very long hair, even washing my hair was a huge undertaking in the beginning! The fibromyalgia brought my life as I once knew it to a screeching halt! Since that time, after the first couple of years I've learned to deal with it, pace myself etc. and it's just become part of my life plus I've recently started on a new product which has basically erased any pain I have with the fibromyalgia.
I take a product called Seabiotics which is absolutely tremendous! If interested please reply post and I can give you more info and have included a link to more info on this product. It gets rid of underlying inflammation and totally erases any pain I have from the fibromyalgia. It's good for chronic pain from many, many conditions and is also great for people who have heart related issues/conditions!
National Fibromyalgia Association www.fmaware.org/fminfo/brochure.htm
Fibromyalgia - MayoClinic.com www.mayoclinic.com/health/fibromyalgia/DS00079
Fibromyalgia Information www.myalgia.com/
(Seabiotics - http://home.sea .com/lifeisagift * this is my link for Seabiotics if you're interested in checking out the info)
hi hon first off make sure you also donot have EDS
it is a horrible desease and it is sometimes misstaken for or goes along with fibromyalgia.you can tell if you have it your skin will feel like it has alot of little bumps on it and you will have thin skin that is hard to heal.if you don't have it be very happy and then keep working on the other i have both and you donot want it i am going to be in a chair soon.i am 34 years old and i have been disabled since 1995.if you wish to talk write me and i will be there for you.tlcdsfit AT yahoo.com goodluck and hope it helps.
Hi, I've been diagnosed with fibro for 21 years. I was able to work 10 years with it but towards the end it was very very hard. I think I'd be doing better had I quit sooner.
I'd think of some hobbies you'd want to do if every you have to quit working. I knit when I can.
I just joined a caring bunch of people and I've found tons of information at www.immunesupport.com. There are bulletin boards and chat rooms plus TONS of information plus they also sell suppliments if you are interested. Very very usefull site.
Hello everyone! I of course also have fibro. I have been working full time as a short order cook for the last several years, but it's to the point now that I just can't seem to keep going! My husband and I live in a small town of about 500 people. The closest doctor office is 38 miles away and hospital. I have been taking prescribed pain meds for years already.
I have had fibro for about 10 years. My house is a disaster because of the way I feel when I get home from work, and to I work 10 pm to 6am. I was hoping to find some kind of way to soon quit the job I have now and maybe work at home making some kind of crafts or something. My husband is totally disabled to. If someone knows about how I can try to do a work at home business it would be great!Email me- lois dot- madrid at yahoo dot com Thanks so much!
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